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18/31 days of honesty: a different kid

I have a kid that is different from most.  He is so different that he eludes any type of diagnosis.  He does have a “some times” diagnosis of apraxia–but some days the slew of therapists think it might just be “low muscle tone”–or maybe not.

Some days I wish that I did have a Dx so that I could confidently say to the grumpy lady in the grocery store “he has whatjamacallit” and then move on with my life.  Some days I wish that we didn’t have to go to the grocery store–but then I see the Mom I know with her perfect child . . . falling apart in the store (maybe even worse than my kid) and I smile on the inside as I remind myself that my kid has age appropriate meltdowns.

When God made my kid–he picked him out just for me.  God knew that I could handle every thing that came my way with this particular child.  I trust God–that he made the right choice and that he will help me on those hard days.

When you have a child who is different your world gets smaller at first because you aren’t sure who you can trust and as parents we need to protect our kids–not just from the intolerance of other kids but of the intolerance adults.  As I have opened myself up and let others in who have kids who are different . . . I have found amazing support.

Let me just be clear–I’m still a Mama Bear and probably won’t ever let my guard down.  I have been know to make grumpy old ladies cry in the grocery store . . . I am joyfulmombaude but try not to poke the bear with the stick–I love my kids and the other special kids that I help take care of–because that is how God made me.  He gave me a huge heart and open arms.

It is not just me and my kid–please do some research on your own–the special needs classes in school are bursting–the need for speech therapist and occupational therapist is overwhelming–the number of kids in foster programs, rehab programs and or just families who need respite care–lots of people could use just a little bit of help–a meal, grocery shopping, or simply just being more tolerant, at the very least!

I’m linking up today with Denise at Life in Bloom and Jessica at Thoughtful Thursday.

journey to purple

Died.  Passed away.  Gone.  Gone–like in a not coming back ever sort of way.

when we are open to life–it is beautiful

When my Dad died when I was 7–I didn’t quite get it.  My mom announced her engagement and I wondered when my dad was coming back . . . I wonder if I have his laugh or walk like him . . .

It happened when I was pregnant–and then NOT.  One minute life–then next moment and it is gone.  I still think about my angel babies . . . they would be 12 and 10 . . .

My Mom–I miss her–I miss what could have been . . . should have been.

the bridge is our now–linking the past with our future

For me I mourn what could have been.  I wish they could be with me on the journey of life–but if they were here my journey would be different.  I get that in my head but my heart still aches.

When I look back on my life I see how it all fits together–one thing leading to another.   I made tons of bad choices, have had my share of sorrows and triumphs, created drama AND was the star of my own drama.

Things feel different now.  I’m not sure if it is being older and hopefully wiser, being menopausal, or finally slowing down to hear the silence.  The voice in side me says “pray about everything and worry about nothing” and I know that it will all work out–because it always had.

I have surrendered.  I am becoming transparent.  I just am, in this moment, making the best of my now.  It is time for me to stop waving my own flags and just feel the breeze.  I get it.  (Thanks Deb and Melinda!)

My load is light–I no longer worry about who I am, what I should be, what will people think or what will people say–I’ve spent my whole life trying to be “something” and not being me–because I was afraid that I wouldn’t be loved, or honored, or accepted.  I was always sassy and doing my own thing and secretly hoping that it would be ok . . . why?

I’m not quite wearing purple with a red hat but I see that in my future!

Where are you in your journey? 

my intention is to link up with these blogs . . .

Whatever Wednesday,God Bumps and God-Incidences,Unwrapping His Promises Living Well Wednesday,Women in the Word Wednesday,Works for Me Wednesday,wip-wednesday,

Company Girl Coffee, Friday Favorite Things, Faith Filled Friday, Just for fun FridaysConsider the Liliesin courage

Dear Chris,

Dear Chris,

I can’t pretend that I know you in an everyday way.  I keep up through Facebook and Christmas cards.  I’m on the very outer fringe of your life yet I’m deeply saddened by your death.

As I peek into your life and the stories that people have told on caring bridge, I can begin to understand a theme–you were gentle, kind, loving and respectful.  You did your best to enjoy life to the fullest.  What a great legacy to leave behind.

But why?  Why did you have to leave?  What about your husband or your kids?  What will happen?

What is the purpose?  I’m not sure.

Thank you Chris for the gift of your wonderful smile.

Be Blessed.

Renee

A few years past my severely handicapped step-brother was killed in a crazy accident involving a train.  I spoke at this funeral about how his life had meaning and purpose, even with so many challenges, he made a difference in each and every life that he touched.

I do not have any answers to the WHY? we die question but I can say that I have a better understanding of WHY WE LIVE.  I think of my step brother as a great teacher–he taught me that everyone has a purpose and each life has a plan.

I know that when he died it gave my life a new perspective.  I dropped my personal agenda and started living life in a new way.  I decided that I wanted to be genuine, authentic and transparent to my Soul.  Some days are better than others–sometimes it is  easy and comforting to go back to my cynical, competitive, and sarcastic ways, I find myself matching the cynical/sarcastic word/actions rather than being joyful and loving.  I’m thankful that a new day dawns so I can start over.

Thank you God for this life and for the life of Chris.  God please grant her loved ones peace, understanding and courage to meet each day.

Miscellany Monday
Hear it, Use It
Playdates with God
Multitudes on Monday
The Better Mom
Motivating Mondays 

On Your Heart
Soli Deo Gloria
Hip Homeschool Moms
Top {Ten} Tuesday
What I Learned This Week
Titus 2sdays
Teach Me Tuesday
Heart and Home Linkup

Walk With Him WednesdayDeep Roots At Home

Whatever Wednesday,God Bumps and God-Incidences,Unwrapping His Promises Living Well Wednesday,Women in the Word Wednesday,Works for Me Wednesday,wip-wednesday,

Company Girl Coffee, Friday Favorite Things, Faith Filled Friday, Just for fun FridaysConsider the Liliesin courage

{Mindful Mothering Mondays}, Mercy Mondays